Arkadaşlar merhaba ben Friedreich Ataksisi (FA) hastasıyım nörolojik bir hastalık denge kaybı ve reflekslerde yavaşlama oluyor
zamanla ilerleyen bi hastalık bende 13-14 yaşında başladı şu an 37 yaşındayım baya ilerledi ama tedavi araştırmaları devam ediyor.
haberler genelde ilginizce sitelerde yayınlanıyor.
İngilizce'miz olmadığı için pek anlayamıyoruz acaba bize yardımcı ola bilecek bir arkadaş var mı?
Are you in or out??
December 28, 2017 by gunnhildskinlove
If we dont have enough people with FA willing to participate in studies, research will make a stop and it will take f o r e v e r to find a cure! Who with FA feels like they have time to wait any longer then absolutely necessary?
Do you want a cure for FA?
If your answer is «Yes!!!!»: You must register here and be willing to participate in research
> FARA - Patient Registry <
It is a nightmare if research stops because there are not enough people to test the drugs, right? There is so much exciting research going on now!
Please sign up TODAY
The lovely people at BabelFAmily are offering to help you register if you dont know english or have other problems ❤ Just leave them a comment on facebook: https://www.facebook.com/groups/52801039038/
As the year of 2017 is coming to an end very soon I wish you all a Happy New Year! ❤ Im looking forward to lots of exciting research news in the new year to come! We are getting close! ❤
Finally: I am still taking Imukin 250 mcg three times per week. I take Vitamin B1, 100 mg shots, two times a week. I also take Idebenone. Just to keep you updated
zamanla ilerleyen bi hastalık bende 13-14 yaşında başladı şu an 37 yaşındayım baya ilerledi ama tedavi araştırmaları devam ediyor.
haberler genelde ilginizce sitelerde yayınlanıyor.
İngilizce'miz olmadığı için pek anlayamıyoruz acaba bize yardımcı ola bilecek bir arkadaş var mı?
Are you in or out??
December 28, 2017 by gunnhildskinlove
If we dont have enough people with FA willing to participate in studies, research will make a stop and it will take f o r e v e r to find a cure! Who with FA feels like they have time to wait any longer then absolutely necessary?
Do you want a cure for FA?
If your answer is «Yes!!!!»: You must register here and be willing to participate in research
> FARA - Patient Registry <
It is a nightmare if research stops because there are not enough people to test the drugs, right? There is so much exciting research going on now!
Please sign up TODAY
The lovely people at BabelFAmily are offering to help you register if you dont know english or have other problems ❤ Just leave them a comment on facebook: https://www.facebook.com/groups/52801039038/
As the year of 2017 is coming to an end very soon I wish you all a Happy New Year! ❤ Im looking forward to lots of exciting research news in the new year to come! We are getting close! ❤
Finally: I am still taking Imukin 250 mcg three times per week. I take Vitamin B1, 100 mg shots, two times a week. I also take Idebenone. Just to keep you updated
